Statement: Following our interview with BBC Breaking News on Sunday evening

Home / SuperJosh News / Statement: Following our interview with BBC Breaking News on Sunday evening

Statement: Following our interview with BBC Breaking News on Sunday evening

The Joshua Wilson Brain Tumour Charity

‘Helping Josh give help and hope to children with brain tumours, post surgery disabilities and along his journey’.

Statement

Following our interview with BBC Breaking News on Sunday 31st August we have received a lot of interest from friends & supporters regarding Josh’s feeds and the different ways that it is possible to feed through a gastrostomy.

Unfortunately due to technical difficulties Dawn, Joshs Mum was disconnected whilst discussing this part of his care.

As part of our work we aim to raise awareness to all areas of living with a brain tumour & post surgery disabilities and we will shortly be releasing a series of videos starring our own hero, SuperJosh, highlighting each aspect of his daily care and needs.

Nest week, to help increase understanding, we will post the first video, which will highlight gastrostomy PEG* feeds to simplify exactly what it means and the benefits it brings to the health of the child or young person.

Having a ‘PEG’  provides Josh with a safe and long-term method of obtaining nutrition & medication, which can be given via either an electronic feed pump or by a bolus feed by his parents or carer.

Jargon Buster

  • NG  – nasogastric (NG)
  • PEG – Percutaneous endoscopic gastrostomy 
  • Short-term access is usually achieved using NG nasal canuala tube as an initial continuous feed source for a child & a PEG is then be considered if feeding is planned for longer than one month.
  • Gastrostomy – A Gastrostomy feeding tube insertion is the placement of a feeding tube through the skin and the stomach wall, directly into the stomach; while a Jejunal feeding tube is a small feeding tube which is placed into the Jejunum (small intestine) so that you can have feed, fluid and medication without swallowing

Press enquiries please contacts hello@joshwilson.org.uk

To find out more about 14 year old Joshua Wilson aka SuperJosh visit http://www.joshwilson.org.uk/about-joshua/

For further information of the work of The Joshua Wilson Brain Tumour Charity visit  http://www.joshwilson.org.uk/about-us/

Follow @journeyjoshuas & @superjcharity

Like www.facebook.com/joshuasjourney.com

SJ man u

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